Gary Rohan and wife Amie at the Sydney best and fairest in 2015. Picture: Adam Yip
Gary Rohan and wife Amie at the Sydney best and fairest in 2015. Picture: Adam Yip

Rohan’s heartbreaking baby news

SYDNEY star Gary Rohan has revealed he and his partner are expecting twins but have been handed the devastating news one will have its life cut short.

Rohan and wife Amie announced their pregnancy on Instagram and at the same time revealed the heartbreaking news.

The twins are due in May next year.

One of the twins has been diagnosed with anencephaly, a serious birth defect that results in parts of the brain and skull to underdevelop.

The affected twin not survive after birth.

In sharing the heartbreaking news with fans on social media, Rohan asked for others affected to come forward and talk to them.

@amierohan_ and I are over the moon to share with you all that we have been blessed twice over 👶🏼👶🏼❤️ Sadly, one of our beautiful bubs has been diagnosed with anencephaly. Anencephaly is a condition where part of the brain, skull and scalp never develops. Our brain is very sensitive, so to live our brain must have cushion and protection. Since our brain tells our heart to beat, our lungs to breath, our legs to move and so on, these babies live from a few moments to a few hours after birth. Babies born with anencephaly are not compatible with life. Ames and I have known about this since our 11 week scan, and since knowing, we've been constantly discussing what we should do, how we should tell people and if we should tell people at all. We come to the decision that either way, BOTH our babies are beautiful, precious human beings, with the only thing being that sadly ones life is destined to be cut short. There are going to be some really difficult days ahead but also many happy ones, and we want to share each and every one of those moments with you all. Talking about our situation with people has been our therapy, letting our emotions out has been the best thing for us personally. We would love for anyone who has been affected by anencephaly themselves or know of others affected by anencephaly to please contact us. Don't be afraid to talk to us about it. That's what we want, we want people to ask questions, we want to talk about it with others. We still need questions answered as much as everyone else. And at the end of the day, we will always be parents to twins, our journey has just been written a little differently to others. All our love Gaz & Ames xx

A post shared by GaryRohan16 (@garyrohan16) on

He said sharing their story has acted as a type of therapy as they come to terms with the diagnosis.

"(Amie) and I are over the moon to share with you all that we have been blessed twice over," Rohan wrote.

"Sadly, one of our beautiful bubs has been diagnosed with anencephaly.

"Our brain is very sensitive, so to live our brain must have cushion and protection. Since our brain tells our heart to beat, our lungs to breath, our legs to move and so on, these babies live from a few moments to a few hours after birth.

"Babies born with anencephaly are not compatible with life.

"Ames and I have known about this since our 11-week scan, and since knowing, we've been constantly discussing what we should do, how we should tell people and if we should tell people at all.

"We come to the decision that either way, both our babies are beautiful, precious human beings, with the only thing being that sadly ones life is destined to be cut short.

"There are going to be some really difficult days ahead but also many happy ones, and we want to share each and every one of those moments with you all.

"Talking about our situation with people has been our therapy, letting our emotions out has been the best thing for us personally.

"We would love for anyone who has been affected by anencephaly themselves or know of others affected by anencephaly to please contact us.

"Don't be afraid to talk to us about it. That's what we want, we want people to ask questions, we want to talk about it with others. We still need questions answered as much as everyone else.

"And at the end of the day, we will always be parents to twins, our journey has just been written a little differently to others."



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