Family needs lift to move disabled girl
BUNDABERG mum Wendy Punch is appealing for the community to help her family with a serious problem.
Mrs Punch's 13-year-old daughter Tori has a rare condition that means she can't stand or walk.
The family needs a total of $8000 to get a lift for Tori to get in and out of their van.
"She's getting too big to hand-lift now," Mrs Punch said.
Tori has proteus syndrome, a rare condition characterised by overgrowth of the bones, skin and other tissues.
Organs and tissues affected by the disease grow out of proportion to the rest of the body.
Mrs Punch said there were only 200 cases of proteus syndrome documented in the world.
"We'd never heard of it before we had Tori," she said.
"We had to do a lot of research and hospital trips to find out about it."
Mrs Punch said the family was trying to get awareness of the condition out in the community so people could understand it.
She said they had raised some of the money they needed for the lift but still needed $3200.
Mrs Punch has set up a Facebook page called "Prayers for Tori" where people can donate money by Paypal or credit card.
But if proteus syndrome wasn't enough of a challenge for Tori, Mrs Punch said she was now showing signs of developing the condition in her right arm.
"She's got a manual wheelchair so that's a problem for her," she said.
"We're trying to upgrade her wheelchair."
Tori also has the spinal condition scoliosis as part of her proteus syndrome condition.
And she has been put on airway alert after a procedure in Bundaberg when doctors were unable to get a breathing tube down her throat.
Mrs Punch said that meant for any future surgeries the family would have to travel to Brisbane.
For rare outings to the beach with her family Tori has a beach wheelchair she can use.