The Waves staff members and fundraisers with Blake Rose (front, centre) and his family at the handover of the donation.
The Waves staff members and fundraisers with Blake Rose (front, centre) and his family at the handover of the donation. Max Fleet Bunfund

Blake gets a boost

THE community has helped bring a smile to nine-year-old Blake Rose's face this week.

Sport club The Waves nominated to raise funds for the family under the Club Smile For a Child fundraiser.

The club handed over $5200 to Blake, who has neurofibromatosis – a condition characterised by the growth of benign tumours, which can grow anywhere in the body where there are nerve cells.

The condition has led to Blake having more than 20 operations.

Blake's stepfather Carl Barrow said the money would help ease the burden in the next few months.

“We are extremely grateful, just overwhelmed with the help of the community,” he said.

“It gives us a chance to get back on top of things.”

The family was able to buy a special walking frame for Blake yesterday.

The funds will also help when Blake needs to upgrade to an adult wheelchair.

Mr Barrow said the fundraising had also helped the family's hope to boost community awareness of the disease.

The Waves human resource manager Tanya McCombe said it was the first year the club could choose a local family to donate to.

“We did some research and had a look of what there was that needed our help, and Blake Rose came up,” she said.

“What grabbed us most is that the disease is not registered as a disability, so they cannot get carers' allowance.

“A lot of their money goes to medical expenses.”

The club held golf days, had charity tins throughout the centre and had raffles to raise the funds for Blake.

People who would like to know more about neurofibromatosis can view the Blake Rose Foundation website at www.theblakerosefoundation.com.